Publication:
Relatives of people with spinal cord injury: a qualitative study of caregivers’ metamorphosis

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10.1038@s41393-018-0092-0 (2).pdf(1.22 MB)
Date
2018-03-21
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Authors
Juguera Rodriguez, Laura ; Pardo Rios, Manuel ; Leal Costa, César ; Castillo Hermoso, Matilde ; Perez Alonso, Nuria ; Diaz Agea, Jose Luis
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Publisher
Springer-Nature
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Enfermería
DOI
https://doi.org/10.1038/s41393-018-0092-0
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info:eu-repo/semantics/article
Description
©2017. This manuscript version is made available under the CC-BY-NC-ND 4.0 license http://creativecommons.org/licenses/by-nc-nd/4.0/ This document is the Accepted, version of a Published Work that appeared in final form in Spinal Cord. To access the final edited and published work see https://doi.org/10.1038/s41393-018-0092-0
Abstract
Study design Qualitative study. Objective To detect the major challenges and needs reported by family member caregivers of people with spinal cord injury (SCI). Setting Family member caregivers of people with SCI and expert professionals were evaluated. This study was conducted in Spain, and most of the participants attended the National Paraplegics Hospital of Toledo. Methods We performed 25 semi-structured interviews. The data were analyzed from a phenomenological perspective using the Colaizzi method. Results The metamorphosis of the caregiver is a complex personal and family-related process. Analysis of the adjustment phase of the caregiving role allowed us to describe three stages, patterns, and trends. Five basic needs were identified. Conclusions People with SCI and their primary caregivers experienced changes in every sphere of their lives. Their most important needs were psychological support, social support, economic resources, information, training throughout the process of suffering, and the creation of informal groups of mutual aid.
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Lesión medular , Cuidadores familiares , Necesidades , Metodología cualitativa
Citation
Spinal Cord. Volume 56, 2018, p. 548-559 Fuente de impacto: WOS (JCR) Categoría: REHABILITATION (SSCIE) 2017 Índice de impacto: 1,936 Q2
URI
http://hdl.handle.net/10201/138718
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