Publication: La cronicidad de la fibromialgia. Una revisión de la literatura
Authors
Triviño Martínez, Ángeles ; Solano Ruiz, Mª Carmen ; Siles González, José
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Publisher
Murcia: Servicio de Publicaciones de la Universidad de Murcia
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DOI
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info:eu-repo/semantics/article
Description
Abstract
La fibromialgia (FM) se caracteriza por ser una enfermedad crónica de etiología desconocida con
múltiples consecuencias tanto para la persona que la padece como para su familia y su propio entorno
social y laboral.
El objetivo de este trabajo se centra en recopilar las experiencias y vivencias de las personas que
padecen fibromialgia.
Para ello se ha realizado una revisión bibliográfica donde se han seleccionado artículos con una
metodología de carácter cualitativo publicados durante el período 2005 a 2012 en las siguientes bases
de datos: Pubmed, IME, CUIDEN y CINAHL. Igualmente en las revistas Scielo, Index de enfermería,
Journal Advanced Nursing y Journal Clinical Nursing.
Tras la revisión bibliográfica 42 artículos fueron seleccionados por cumplir los criterios de inclusión
donde se identifican los siguientes temas claves: diagnóstico de la enfermedad, tratamiento, la
enfermedad y el dolor, alteración del sueño, la fatiga, deterioro cognitivo, impacto laboral, impacto
emocional, necesidades y demandas de los pacientes hacia los profesionales sanitarios, vivencia de la
enfermedad y búsqueda de ayuda e información.
Los pacientes no son escuchados en el principio de su enfermedad, son considerados enfermos con
trastornos psicológicos lo que les ocasiona incertidumbre y una estigmatización social. El punto de
Enfermería Global Nº 35 Julio 2014
Página 274
inflexión es recibir un diagnóstico firme, a partir de aquí la persona podrá elaborar estrategias de
afrontamiento durante su proceso. Los síntomas más importantes asociados a la enfermedad son el
dolor, la fatiga, la alteración del sueño y el deterioro cognitivo que repercutirán en sus actividades a
nivel social y laboral.
ABSTRACT Fibromyalgia (FM) is characterized as a chronic disease of unknown etiology with multiple consequences for the person who suffers it, his family and own social-working environment. The aim of this paper focuses on collecting the experiences of people with fibromyalgia. In order to do so, it was carried out a bibliographic review in which the articles were selected by qualitative methodology. The articles were published during the period 2005-2012 in the following databases: PubMed, IME, CUIDEN and CINAHL. Also, in Scielo Journals, Nursing Index, Journal Advanced Nursing and Clinical Nursing Journal. Following the literature review, 42 items met the inclusion criteria and were bracketed on the following category: disease diagnosis, treatment, disease and pain, sleep disturbance, fatigue, cognitive impairment, labor impact, emotional impact, needs and demands of patients to health professionals, experience of illness and seeking help and information. The patients’ voice is not heard or taken into consideration at the beginning of their illness. They are considered patients with psychological disorders which cause them uncertainty and social stigmatization. The inflexion point is getting a firm diagnosis; from this point the person will be able to create strategies during their own process. The most significant symptoms associated with the disease are: pain, fatigue, sleep disturbance and cognitive impairment that will affect their social and labor activities.
ABSTRACT Fibromyalgia (FM) is characterized as a chronic disease of unknown etiology with multiple consequences for the person who suffers it, his family and own social-working environment. The aim of this paper focuses on collecting the experiences of people with fibromyalgia. In order to do so, it was carried out a bibliographic review in which the articles were selected by qualitative methodology. The articles were published during the period 2005-2012 in the following databases: PubMed, IME, CUIDEN and CINAHL. Also, in Scielo Journals, Nursing Index, Journal Advanced Nursing and Clinical Nursing Journal. Following the literature review, 42 items met the inclusion criteria and were bracketed on the following category: disease diagnosis, treatment, disease and pain, sleep disturbance, fatigue, cognitive impairment, labor impact, emotional impact, needs and demands of patients to health professionals, experience of illness and seeking help and information. The patients’ voice is not heard or taken into consideration at the beginning of their illness. They are considered patients with psychological disorders which cause them uncertainty and social stigmatization. The inflexion point is getting a firm diagnosis; from this point the person will be able to create strategies during their own process. The most significant symptoms associated with the disease are: pain, fatigue, sleep disturbance and cognitive impairment that will affect their social and labor activities.
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